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Nishant Pawar, a 13 year old boy is suffering from Wilson disease. Wilson disease is a rare genetic disorder characterized by excess copper deposition in the body. Nishant who is the younger of two siblings hailing from a village near Pune is fighting for his life, as he is suffering from end stage liver disease.He was detected to be suffering from Wilson disease at the age of five years, when he developed distention of abdomen. His abdominal girth increased by six inches. Then followed, regular visits and admissions at Dinanath Mangeshkar hospital in Pune.
In 2006 another tragedy struck the family, when his father who was a worker in a factory lost his job due to closing down of that unit. The family could not afford his treatment for few months. This worsened his medical condition...
After a long struggle of nine years and almost 30 hospitalisations later his liver has failed due to advanced cirrhosis. He is deeply jaundiced, his blood does not clot and his abdomen often swells up with fluid.
Mr. Dadatray Patil, his father, “Nishant is requesting for liver transplant to be done. He has suffered a lot, but he does not want to trouble me. When his symptoms increase, he takes medicines and tries to hide his condition from me”. Tears fill his father’s eyes and he could not say anything further. Mr. Patil runs a small stall of eatables and snacks in his village and he has got a loan of eight lakhs, which is a huge amount for this family of six, where he is the only earning member.
Nishant is suffering from end stage liver disease and needs an early liver transplant. He is under the care of Dr. Aabha Nagral at Jaslok hospital and Research Centre. He is listed on Cadaver Liver Transplant city waiting list for liver transplant. The cost of this procedure is Rs 13 lakhs. The patient will need immunosuppressive drugs after transplantation, the cost of which is about Rs 20,000/- to Rs 25,000/- per month for the initial few months and then about Rs. 10,000 a month. Children's Liver Foundation (CLF) is dedicated to support deserving Children suffering from Liver disease. His family has requested financial and medical support.
This is an earnest appeal for financial help to save his life.
Please contact us on:
pedliver@gmail.com
O-18, Nav-Bhavna, Veer Savarkar Road,
Prabhadevi, Mumbai 400 025
Cheque payment can be in the name of: Children's Liver Foundation.
RTGS/ Wire Transfer can be made to:
Account Name: CHILDRENS LIVER FOUNDATION
Bank Name: SARASWAT CO-OP BANK LTD
Branch Name: Prabhadevi Branch
NEFT / IFSCcode: SRCB0000022
Account No. 022200102715348
Account Type: Saving
Micr Code: 400088024
SMS requests to
9224791366
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