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Event Videos
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Narendra Limaye, 26, Wilson’s disease is an inherited disorder in which excessive amounts of copper accumulate in the body, particularly in the liver, brain, and eyes.
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http://www.ncbi.nlm.nih.gov/pubmed/22595974 Shen YM et al. – High rates of Fat–soluble vitamin (FSV) deficiency were found in pediatric patients with chronic cholestasis under present follow–up. Oral, absorbable, fat–soluble vitamin formulation (OAFSV) supplementation is safe and potentially effective in pediatric patients with cholestasis. Methods Published on:
Nov-2012
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In India a large number of children are being afflicted by chronic liver diseases, especially viral infections like hepatitis B and C. For example an ongoing study being conducted by CLF reveals a high incidence of Hepatitis B and C among children suffering with Thalassemia.
An increasing number of kids are also being diagnosed with rare conditions like Wilson's disease, Gaucher's disease amongst others. Treatment and investigations of these conditions are expensive, and a vast majority of parents cannot provide their children with adequate treatment due to lack of resources. |
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J Pediatr Gastroenterol Nutr. 2012 Feb;54(2):193-6. Pediatric end-stage liver disease score in acute liver failure to assess poor prognosis. Sanchez MC, D'Agostino DE. Source Pediatric Gastroenterology and Hepatology Division, Hospital Italiano Buenos Aires, Ciudad Autonoma Buenos Aires, Buenos Aires, Argentina. mcamilasanchez@gmail.com Abstract BACKGROUND AND AIM: Published on:
Feb-2012
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A story of survival of the youngest of three kids from a family, which lost two elder children within a span of one year to Wilson’s disease, a condition, detected only when their second child was dying……………….. |
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Indian Pediatr. 2012 Apr 10. pii: S097475591100585-1. [Epub ahead of print] Spectrum of Lysosomal Storage Disorders at a Medical Genetics Center in North India. Verma PK, Ranganath P, Dalal AB, Phadke SR. Source Published on:
Oct-2012
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is an artist with a cause. After having suffered from Wilson’s disease for the past 14 years, he decided to use his artistic skills to raise funds for the treatment of others who suffer from the disorder.SMS requests to
9224791366
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